Sorry it has taken so long for us to send an update, things have been crazy!
Although this will probably be a brief update, I'll do what I can to update you on how things are going.
First off, Isaac is doing amazingly well! We couldn't be happier with his progress since our last update in November, which seems so long ago now. At that time, we made the difficult decision to avoid putting Isaac in a back brace for 23 hours a day for the next 14 years. While it was hard to choose between what was being said by doctors was best for Isaac and his quality of life, we're thrilled that we made the decision we made.
Isaac had his 6 month update a few weeks ago and it's been discovered that his back is stable and, in fact, getting a bit better. As well, his heart continues to be stable, his eyes have not worsened, and his joints appear less stiff. All wonderful news for us!
We are in the midst of planning our Celebrity Golf Tournament and our RUN FOR ISAAC! event at the National Capital Race. I'll be sure to send an update after our team takes part in the event this weekend.
Kids are just walking through the door from a long day at Sick Kids' so must go!
The Isaac Foundation