Tuesday, May 15, 2007

Civitan Support, Isaac's Update, and Busy Times...

Hi Everyone,

As usual, things have been incredibly hectic around home. We're both very busy working on Foundation events, planning for the National Capital Race in Ottawa, looking for sponsors for the Celebrity Golf Tournament in June, updating websites, emailing families, and delivering presentations on behalf of the Foundation to different organizations.
One such organization that we've been delivering presentations to is the Civitan. Our journey with Civitan began a few months ago when a Civitan Club member in Kingston heard an interview I did on the radio. She asked me to attend the Kingston Civitan meeting to talk about Isaac, his disease, and our Foundation. The assembled crowd was wonderful, and they received my message with empathy and tremendous support. From there, we were asked to present to the Eastern Region Convention in Arnprior, where clubs from Eastern Ontario and Quebec sent representatives. Again, I was overwhelmed by the support we received from the members and we thank them from the bottom of our hearts for their words of encouragement and their vow to inform people about rare diseases, such as the one that Isaac is suffering from.
A highlight from the Civitan Convention came when one member, Bill MacAdoo, sacrificed his body to support our cause. He took donations from the assembled group in exchange for waxing his body! To top it off, he got a piercing as well!!! We truly appreciate his support and want him to know that his efforts haven't gone unrecognized. Please CLICK HERE to hear a message of Thanks from Isaac for Bill's selfless act. And CLICK HERE for a quick news article about the event.
The RUN FOR ISAAC! event is quickly approaching and we're working on ordering clothing to sell at our booth at the Pfizer Health and Fitness Expo. So far, we've ordered some Orange Hoodies, more hats and T-Shirts, some kids hoodies, and some spring/fall jackets. In addition, some Hockey Jersey's are being made for us as well. Of course, all of these items are available for interested purchasers. We'll do our best to get some photos of the items up as soon as we receive them.
As far as Isaac's health update goes, we got some good news regarding the kyphosis in his spine...it's not as bad as had previously been reported. We're quite relieved about this and will continue to monitor him closely. But his heart murmur is getting worse, and we're concerned that his growth hasn't continued to speed along as it did at the beginning of his treatments. Again, this will all be monitored and we'll update more as soon as we have details.
The Celebrity Golf Tournament is in full swing and we're actively searching for silent auction items and signing teams up. A registration link will be posted soon, as will details for the event. What has been set is the date...JUNE 23rd at the Inverary Golf Club near Kingston, Ontario. Let us know if you want to be part of the event ASAP because spots are already filling up fast.
That's it for now. We'll try and update again soon.
See you in Ottawa!
The Isaac Foundation

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